Wittisisms

I have no idea what I'm doing. Just go with it.
When did using pet names indicate being ‘fun and outgoing”? I thought being fun and outgoing made you fun about outgoing? silly me.

When did using pet names indicate being ‘fun and outgoing”? I thought being fun and outgoing made you fun about outgoing? silly me.

My Parents are Dead and My Sister is Disabled

congalineofdurin:

cockismybusiness:

team—wolverine:

therealbarbielifts:

eisforedna:

On May 28th, my sister, Edna, turned 31.

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Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

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Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

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That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

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ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

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May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

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Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

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Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

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YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

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Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

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For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

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But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

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She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

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So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

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Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry

SIGNAL BOOST

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

(Source: , via i-killed-trask)

jqqqq:

i suppose you could say seymour did it…… for the vine

cost20140708:

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I need this

cost20140708:

Fashion rings ,only $0.99 shop at Cost21.com
SHOP LINK:?http://www.cost21.com/fashion-cheap-rings-c-47_43.html
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I need this

dresdencodak:

dresdencodak:

Inspired by Anita Sarkeesian’s Video Game Tropes vs Women, I wanted to pitch a Zelda game where Zelda herself was the hero, rescuing a Prince Link. 

Clockwork Empire is set 2,000 years after Twilight Princess, and is not a reboot, but simply another iteration in the Zelda franchise. It just so happens that in this case, Zelda is the protagonist. I’m a very big Zelda fan, and worked hard to draw from key elements in the continuity and mythos.

This concept work is meant to show that Zelda as a game protagonist can be both compelling and true to the franchise, while bringing new and dynamic game elements that go farther than being a simple gender swap.

Hope you like it!

(for more info about this project, check out my FAQ)

Wow, it finally happened, my Zelda thing passed 100,000 notes! As promised, I’ll release some new content for it in the near future.

(via geekgirlvideo)

luna-nix:

whoufflesoufflegirl:

the-treble:

willowpedia:

crazymolerat36:

ewitsmichelle:

not just followers, everyone.

same

I’m here if any of you need to talk<3

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The best part is, this post actually does something, it offers support, unlike one of those useless “reblog if you care” posts.

Exactly. Which is why I’ll reblog this one.

(Source: cali4niadreaming, via thetomska)

anorkie:

This is my brother, Alastair. He is an aspiring musician and photographer, an excellent cosplayer, and an overall nice person to be around. He recently told our mother that he is transgender and wants to start transitioning soon with the help of hormone therapy. He has already set up an appointment in August to get his first 3 month supply of testosterone. Our mother is completely against testosterone and refuses to call Alastair by his preferred name and pronouns. As soon as he starts taking testosterone in August, she is kicking him out of the house, no questions asked.
This past week has been extremely upsetting for both my brother and I. Our mother is being very controlling. She will not allow us to see certain friends and believes all of our friends are toxic, when in fact they have been very supportive. She believes Alastair is going through a phase, but this is something that he has wanted for years.
To support my brother, I’ve opened a fundraiser, so when he is forced to leave at least he will be able to support himself financially. He just graduated high school and is currently unemployed; he needs all of the help he can get.
I’m unbelievable angry at our mother for not being supportive of Al, and at our step-father for treating him like a joke. Please, if you can spare a dollar or two, I will be forever grateful. I want my brother to be able to pursue the life he wants to live. He is an extremely intelligent, creative, kind and funny person. He is full of potential. I think if I can see look at him and see that, a few kind strangers can too.
If you are unable to donate, please reblog this. Thank you.

anorkie:

This is my brother, Alastair. He is an aspiring musician and photographer, an excellent cosplayer, and an overall nice person to be around. He recently told our mother that he is transgender and wants to start transitioning soon with the help of hormone therapy. He has already set up an appointment in August to get his first 3 month supply of testosterone. Our mother is completely against testosterone and refuses to call Alastair by his preferred name and pronouns. As soon as he starts taking testosterone in August, she is kicking him out of the house, no questions asked.

This past week has been extremely upsetting for both my brother and I. Our mother is being very controlling. She will not allow us to see certain friends and believes all of our friends are toxic, when in fact they have been very supportive. She believes Alastair is going through a phase, but this is something that he has wanted for years.

To support my brother, I’ve opened a fundraiser, so when he is forced to leave at least he will be able to support himself financially. He just graduated high school and is currently unemployed; he needs all of the help he can get.

I’m unbelievable angry at our mother for not being supportive of Al, and at our step-father for treating him like a joke. Please, if you can spare a dollar or two, I will be forever grateful. I want my brother to be able to pursue the life he wants to live. He is an extremely intelligent, creative, kind and funny person. He is full of potential. I think if I can see look at him and see that, a few kind strangers can too.

If you are unable to donate, please reblog this. Thank you.

(via megustadavidtennant)